Background:My Diabetes My Way (MDMW) is the National Health Service (NHS)\nScotland website for people with diabetes and their carers. It consists of an interactive\ninformation website and an electronic personal health record (ePHR) available to the\n291,981 people with diabetes in Scotland. We aimed to analyse the demographic characteristics\nof current registrants and system usage and activity during 2016.\nMethods: We analysed system audit trails to monitor user activity and page accesses\non the information website, and logins and activity within the ePHR. The ePHR contains\ndata from SCI-Diabetes, NHS Scotlandâ??s flagship diabetes record, sourcing data\nfrom primary and secondary care, specialist screening services and laboratory systems.\nWe reviewed patient registration characteristics to collate demographic data for the\nMWDH cohort, then compared this to aggregate data published in the 2016 Scottish\nDiabetes Survey.The Scottish Diabetes Survey is an annual population-based report\ndetailing diabetes statistics for the whole diabetes population in NHS Scotland.\nResults:The MDMW information website received an average of 101,382 page\naccesses per month during 2016 (56.9% increase from 2015; n = 64,607). ePHR registrants\nwere more likely to be younger (p < 0.001) and have an ethnicity of â??whiteâ?\n(p < 0.001) than the background diabetes population. At the end of 2016, 11,840 people\nwith diabetes had accessed their personal clinical information (58.6% increase since\nend 2015; n = 7464). During 2016, an average of 1907 people accessed their records\neach month (48.3% increase from 2015; n = 1286).\nConclusion:My Diabetes My Way is a useful tool aid to diabetes self-management.\nThe service is unique in offering records access to a national population, providing\ninformation from all relevant diabetes-related sources, rather than a single silo. MDMW\nsupports the diabetes improvement, self-management, healthcare quality and eHealth\nstrategies of the Scottish Government. The service also has potential to be adapted to\nwork with other clinical systems and conditions.
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